Publications

2017

Staley K. (2017) A link between learning and impact in public involvement in research: implications for evaluation and practice? TwoCan Associates, UK.
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Staley K. (2017) ‘Changing what researchers “think and do”: Is this how involvement impacts on research?’ Research for All, 1 (1), 158-167.
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2016

Staley K. (2016) An evaluation of a pilot project of patient and public involvement in research at Parkinson’s UK. London: Parkinson’s UK.
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Staley K, Ashcroft J, Doughty L & Szmukler G. (2016) Making it clear and relevant: patients and carers add value to studies through research document reviews. Mental Health and Social Inclusion, 20 (1), 36-43.
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Staley K and Doherty C. (2016) It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICE. Research Involvement and Engagement, 2:4
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2015

Staley, K. (2015) ‘Is it worth doing?’ Measuring the impact of patient and public involvement in research. Research Involvement and Engagement, 1, 6.
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2013

INVOLVE (2013) INVOLVE (2013) Examples of public involvement in research funding applications. Eastleigh: INVOLVE.
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Staley K. (2013) A series of case studies illustrating the impact of service user and care involvement on research. MHRN: London.
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Staley K. (2013) Lay REC members: Patient or public? Journal of Medical Ethics, 39, 780-782.
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Staley K. (2013) There is no paradox with PPI in research. Journal of Medical Ethics, 39, 186-187.
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2012

Staley K, Buckland SA, Hayes H, and Tarpey M. (2012) The missing links’: understanding how context and mechanism influence the impact of public involvement in research. Health Expectations, 17, 755-764.
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Staley K, Kabir T and Szmukler G. (2012) Service users as collaborators in mental health research: less stick, more carrot. Psychological Medicine, 43(6), 1121-5.
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Staley K. (2012) An evaluation of service user involvement in studies adopted by the Mental Health Research Network. MHRN: London.
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TwoCan Associates (2012) Developing training and support. Online resource. INVOLVE: Eastleigh.
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2011

Staley, K. (2011) Collaborate and Succeed: An evaluation of the COMPASS Masterclass in consumer involvement in research. NCRI: London.
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TwoCan Associates (2011) Evaluation of the ‘User Involvement in Local Diabetes Care’ project. Diabetes UK: London.

2010

TwoCan Associates (2010) Turning the pyramid upside down: examples of public involvement in social care research. INVOLVE: Eastleigh.
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TwoCan Associates for the UKCRC and NCRI (2010) Patient and public involvement (PPI) in research groups – Guidance For Chairs.
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2009

Staley K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.
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TwoCan Associates (2009) An evaluation of the process and impact of patient and public involvement in the advisory groups of the UK Clinical Research Collaboration. Final Report. UKCRC: London.
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TwoCan Associates (2009) A critical assessment of the development of patient and public involvement in the UK Clinical Research Collaboration. UKCRC: London.
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2008

TwoCan Associates (2008) Getting it right for service users and carers, getting it right for research: How to decide whether to help researchers find people to take part in research. TwoCan Associates: Hove.
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TwoCan Associates (2008) Scoping research priority setting (and the presence of PPI in priority setting) with UK clinical research organisations and funders. The James Lind Alliance: Oxford.

2006

Staley K and Minogue V. (2006) User involvement leads to more ethically sound research. Clinical Ethics, 1(2): 95-100.

2005

Hanley B & Staley K. User and Carer Involvement: Sharing our Experience. LMCA: London.
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Hanley B & Staley K. User and Carer Involvement: A Good Practice Guide. LMCA: London.
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Staley K & Hanley B. User and Carer Involvement: How to Develop a Strategy. LMCA: London.
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2002

Pickin C, Popay J, Staley K, Bruce N, Jones C and Gowman N. (2002) Promoting organisational capacity to engage with active lay communities: A model to support organisational change for health. Journal of Health Services Research, 7(1):34-42.

Staley K. Voices, values and health. Involving the public in moral decisions. In: Hidden Assets: Values and decision-making in the NHS. (2002) Editors: Bill New and Julia Neuberger. King’s Fund: London