User involvement in research: A route map
Acknowledgements
The idea for a ‘route map’ came from the UK Trial Manager’s Network Toolkit
Thanks to the following who acted as supporting authors, offering advice on the structure and content of the route map:
Laura Shalev Greene, Involvement and CAN Manager, Breakthrough Breast Cancer
Leanne Metcalf, Assistant Director, Research, Asthma UK
Marita Pohlschmidt, Director of Research, Muscular Dystrophy Campaign
Simon Denegri, Chief Executive, AMRC
Thanks to the people who shared their experience by offering case studies or other contributions:
Michelle Bendix, Parkinson’s UK
Peter Coleman, The Stroke Association
Lisa Croucher, Arthritis Research UK
Brian Dickie, Motor Neurone Disease Association
Laura Shalev Greene, Breakthrough Breast Cancer
Helen Hayes, INVOLVE
Ed Holloway, MS Society
John Larsen, Rethink
Leanne Metcalf, Asthma UK
Alison Monk, MS Society
Marita Pohlschmidt, Muscular Dystrophy Campaign
Rachel Purtell, Folk.us
Margaret Rawnsley, Epilepsy Action
Katie Scott, The Prostate Cancer Charity
Susanne Sorensen, Alzheimer’s Society
Philippa Yeeles, INVOLVE (formerly the UKCRC)
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