We carry out evaluations to find out ‘what works’ in terms of service development and delivery and to gather evidence of impact on all stakeholders, in particular whether a service improves the quality of service users’ lives. We also evaluate the impact of involving patients and carers in health and social care R&D. Recent examples of our evaluation projects include:
Older People’s Advocacy Alliance (OPAAL)
We evaluated a pilot project to develop a new advocacy service for older people affected by cancer, recruiting volunteers with experience of cancer to provide advocacy support. This project was funded by The Big Lottery and Macmillan Cancer Support. We were subsequently asked to evaluate the national roll-out of this service. The learning and evidence that we captured from the pilot was instrumental in shaping the second, successful bid for funding.
Compassion in Dying
We evaluated a Big Lottery funded pilot project to provide support to older people in completing advance decisions. The evidence captured from this evaluation provided valuable learning during the project and informed the development of a second bid. CiD were successful in obtaining funding for the national roll-out of this service, again from the Big Lottery Silver Dreams Programme. TwoCan have also been asked to evaluate the flagship project.
The Mental Health Research Network (MHRN)
We evaluated the impact of involving people affected by mental health problems in the research projects supported by the MHRN. We also considered how best the MHRN could support researchers to improve the quality and impact of involvement.
Macmillan Volunteer Welfare Benefits Advice Service
We evaluated a pilot project, which was the first to engage volunteers in providing welfare benefits advice to people with cancer at the end of life, in their own homes. This project was funded by Macmillan Cancer Support.
British Paediatric Surveillance Unit (BPSU), Royal College of Paediatrics and Child Health
We carried out an evaluation of the impact of involving patients and members of the public at the Executive Board level within the BPSU, as well as in the research projects the BPSU supports. This evaluation identified the value of PPI in epidemiological research and led to the development of new guidance on PPI for BPSU researchers.
National Diabetes Support Team (NDST) Service User Involvement Project
We were commissioned by Diabetes UK to evaluate the impact of involving people affected by diabetes in the work taken forward by the NDST to implement the National Service Framework for Diabetes. This evaluation drew out lessons for other organisations involving users and carers at a national strategic level. We subsequently evaluated a project where similar approaches were applied at a local level to involve service users and carers in diabetes service development.
Patient and Public Involvement in the UK Clinical Research Collaboration (UKCRC)
We were commissioned by the UK Clinical Research Collaboration to evaluate the impact of having patients and members of the public involved in their Board and Advisory Groups, and to evaluate the processes of recruitment and training and support offered to those members. This evaluation drew out lessons for involving people at a strategic level in a research organisation. We subsequently carried out another evaluation for UKCRC assessing the history of PPI development across the organisation as a whole.