Publications

2021

Staley K, Elliott J, Stewart D. et al. (2021) Who should I involve in my research and why? Patients, carers or the public? Research Involvement and Engagement, 7: 41.
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2020

Staley K, Crowe S, Crocker JC. et al. (2020) What happens after James Lind Alliance Priority Setting Partnerships? A qualitative study of contexts, processes and impacts. Research Involvement and Engagement, 6: 41.
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Staley K. (2020) An evaluation of young people’s involvement in the ‘Teenage and Young Adult Cancer’ James Lind Alliance Priority Setting Partnership. TwoCan Associates, UK.
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2019

Staley K and Crowe S. (2019) More Than a Top 10: How James Lind Alliance Priority Setting Partnerships transform research, people and organisations. TwoCan Associates, UK and Crowe Associates, UK.
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Hanley B, Staley K, Stewart D, Barber R. (2019) Qualitative research and patient and public involvement in health and social care research: What are the key differences?
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Staley K, Sandvei M and Horder M. (2019) ‘A problem shared…’ The challenges of public involvement for researchers in Denmark and the UK. University of Southern Denmark and TwoCan Associates, UK.
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Staley K and Barron D. (2019) Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation? Research Involvement and Engagement, 5:14.
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Staley K, Cockcroft E, Shelly A and Liabo, K. (2019) ‘What can I do that will most help researchers?’ A different approach to training the public at the start of their involvement in research. Research Involvement and Engagement, 5:10.
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2018

Staley K. (2018) “Researchers don’t know what they’re missing”—the impact of patient involvement in research. The BMJ Opinion 28 Nov 2018.
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INVOLVE (2018) Public Information Pack (PIP) 1, How to get involved in NHS, public health and social care research – A quick guide. INVOLVE, Southampton. (Compiled by Kristina Staley and Sam Goold from INVOLVE).

INVOLVE (2018) Public Information Pack (PIP) 2, How to get involved in NHS, public health and social care research. INVOLVE, Southampton. (Compiled by Kristina Staley and Sam Goold from INVOLVE).
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2017

Staley K and Elliott J. (2017) Public involvement could usefully inform ethical review, but rarely does: what are the implications? Research Involvement and Engagement, 3:30.
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Staley K, Abbey-Vital I and Nolan, C. (2017) The impact of involvement on researchers: a learning experience. Research Involvement and Engagement 3:20.
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Staley K. (2017) ‘Changing what researchers “think and do”: Is this how involvement impacts on research?’ Research for All, 1 (1), 158-167.
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2016

Staley K. (2016) An evaluation of a pilot project of patient and public involvement in research at Parkinson’s UK. London: Parkinson’s UK.
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Staley K, Ashcroft J, Doughty L & Szmukler G. (2016) Making it clear and relevant: patients and carers add value to studies through research document reviews. Mental Health and Social Inclusion, 20 (1), 36-43.
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Staley K and Doherty C. (2016) It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICE. Research Involvement and Engagement, 2:4
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2015

Staley, K. (2015) ‘Is it worth doing?’ Measuring the impact of patient and public involvement in research. Research Involvement and Engagement, 1, 6.
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2013

INVOLVE (2013) INVOLVE (2013) Examples of public involvement in research funding applications. Eastleigh: INVOLVE.
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Staley K. (2013) A series of case studies illustrating the impact of service user and care involvement on research. MHRN: London.
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Staley K. (2013) Lay REC members: Patient or public? Journal of Medical Ethics, 39, 780-782.
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Staley K. (2013) There is no paradox with PPI in research. Journal of Medical Ethics, 39, 186-187.
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2012

Staley K, Buckland SA, Hayes H, and Tarpey M. (2012) The missing links’: understanding how context and mechanism influence the impact of public involvement in research. Health Expectations, 17, 755-764.
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Staley K, Kabir T and Szmukler G. (2012) Service users as collaborators in mental health research: less stick, more carrot. Psychological Medicine, 43(6), 1121-5.
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Staley K. (2012) An evaluation of service user involvement in studies adopted by the Mental Health Research Network. MHRN: London.
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TwoCan Associates (2012) Developing training and support. Online resource. INVOLVE: Eastleigh.
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2011

Staley, K. (2011) Collaborate and Succeed: An evaluation of the COMPASS Masterclass in consumer involvement in research. NCRI: London.
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TwoCan Associates (2011) Evaluation of the ‘User Involvement in Local Diabetes Care’ project. Diabetes UK: London.

2010

TwoCan Associates (2010) Turning the pyramid upside down: examples of public involvement in social care research. INVOLVE: Eastleigh.
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TwoCan Associates for the UKCRC and NCRI (2010) Patient and public involvement (PPI) in research groups – Guidance For Chairs.
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2009

Staley K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.
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TwoCan Associates (2009) An evaluation of the process and impact of patient and public involvement in the advisory groups of the UK Clinical Research Collaboration. Final Report. UKCRC: London.
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TwoCan Associates (2009) A critical assessment of the development of patient and public involvement in the UK Clinical Research Collaboration. UKCRC: London.
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2008

TwoCan Associates (2008) Getting it right for service users and carers, getting it right for research: How to decide whether to help researchers find people to take part in research. TwoCan Associates: Hove.
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TwoCan Associates (2008) Scoping research priority setting (and the presence of PPI in priority setting) with UK clinical research organisations and funders. The James Lind Alliance: Oxford.

2006

Staley K and Minogue V. (2006) User involvement leads to more ethically sound research. Clinical Ethics, 1(2): 95-100.

2005

Hanley B & Staley K. User and Carer Involvement: Sharing our Experience. LMCA: London.
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Hanley B & Staley K. User and Carer Involvement: A Good Practice Guide. LMCA: London.
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Staley K & Hanley B. User and Carer Involvement: How to Develop a Strategy. LMCA: London.
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2002

Pickin C, Popay J, Staley K, Bruce N, Jones C and Gowman N. (2002) Promoting organisational capacity to engage with active lay communities: A model to support organisational change for health. Journal of Health Services Research, 7(1):34-42.

Staley K. Voices, values and health. Involving the public in moral decisions. In: Hidden Assets: Values and decision-making in the NHS. (2002) Editors: Bill New and Julia Neuberger. King’s Fund: London